| About PA-IPF |
The Pennsylvania Idiopathic Pulmonary Fibrosis State Registry is a collaborative effort of five
medical centers in the Commonwealth of Pennsylvania aiming to: increase awareness of IPF, provide
compassionate care for patients and their families, and to improve access to care and research to
patients with IPF and their families. Throughout this site you will be able to find an extensive
range of information and opportunities in or around your community such as:
The PA-IPF is funded by the Pennsylvania Department of Health and by a donation from the Simmons Family.
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| About IPF |
| Pulmonary Fibrosis is an insidious disease that attacks the air sacs of
the lung. The result is that scar tissue forms which make it very
difficult to breathe. When the cause is unknown the disease is called
Idiopathic Pulmonary Fibrosis (IPF).
While the disease can be handled for a period of time, in most cases, the
disease is fatal.
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| Who Has IPF? |
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While there is not a precise figure, there are probably 100,000 patients
with disease in the U.S. and our best guess is that 5,000 to 7,000
Pennsylvanians suffer from this disease.
The University of Pittsburgh Medical Center Hospital system suggested
recently that the disease was more common then expected. Medical centers in
Pennsylvania are striving to assess the extent of lung fibrosis in the
Commonwealth of Pennsylvania to provide a better standard of care,
diagnosis, and discover new therapeutic interventions. |
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