Pennsylvania Idiopathic Pulmonary Fibrosis State Registry
 

Pennsylvania Idiopathic Pulmonary Fibrosis State Registry
Talk to a PA-IPF Coordinator by calling the PA-IPF Hotline  1-866-922-4IPF
A project of the University of Pittsburgh, University of Pennsylvania, Pennsylvania State, Temple University, Geisinger Medical System
spacer
HOME
spacer
INFORMATION
ABOUT IPF
spacer
REGISTER
NOW
spacer
PARTICIPATING
CENTERS
spacer
PHYSICIAN
RESOURCES
spacer
NEWSLETTERS
spacer
ABOUT IPF
About IPF - FAQ
Risk Factors for IPF
Diagnostic Tests for IPF
I've been diagnosed with IPF
  Now what?
What If I Need Oxygen?
Exercise and IPF
How Will IPF Affect My Diet?
I'm Afraid of death
  What can I do?
Will My Children Get IPF?
spacer
What if I need Oxygen?
This is one of the greatest fears of IPF patients.

We have all seen people carting along oxygen tanks with tubes hooked up to their noses, and it is frightening to think that we may be required to do that as well.

One man says, "I was afraid I would become dependent on oxygen and I was afraid of how I would look in public. But I told the doctor that I needed to go on it. I had a very active life because I was in college and I didn't want to depend on anybody, and the oxygen freed me up to do the things I needed to do."

What is remarkable is how the benefits of oxygen therapy so greatly outweigh the inconveniences or fears of social stigmatization. When asked how he overcame his fears, this patient answered, "I just learned to deal with it. After a while, I just realized that nobody was looking. The big thing was going to class for the first time, and everybody was staring. But I stopped caring because I felt so much better on oxygen. It was a very freeing experience getting out of the house. I recognized that without oxygen I was hurting my other organs, and I was stagnating in the house."

 

 

  spacer
spacer
· TERMS OF USE · PRIVACY POLICY ·
Copyright © 2008 PA-IPF, all rights reserved