| Patient Advocacy Event |
Monday, Sept 14, 2009
10:00 am - 1:00 pm |
Pulmonary experts from University of Pittsburgh
Medical Center, Temple Lung Center, Geisinger Health
System, University of Pennsylvania and Penn
State/Hershey Medical Center will present timely
information, new research findings and the best medical
advice available to help you cope with your condition.
Oxygen will be available.
Light refreshments will be provided.
Harrisburg Hilton Hotel
1:00 pm – 1:30 pm
Lunch will be served.
1:30 pm – 3:30 pm
Question & Answer Session with Pulmonary Research
Experts
To learn more about this event or to register, call
1-866-922-4IPF (4473). At the prompt, give your name,
the number of people who will be attending, your phone
number and zip code.
more information...
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| About PA-IPF |
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The Pennsylvania Idiopathic Pulmonary Fibrosis State
Registry is a collaborative effort of five medical
centers in the Commonwealth of Pennsylvania aiming to:
increase awareness of IPF, provide compassionate care
for patients and their families, and to improve access
to care and research to patients with IPF and their
families. Throughout this site you will be able to find
an extensive range of information and opportunities in
or around your community such as:
The PA-IPF is funded by the Pennsylvania Department
of Health and by a donation from the Simmons Family.
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| About IPF |
| Pulmonary Fibrosis is an insidious disease that
attacks the air sacs of the lung. The result is
that scar tissue forms which make it very difficult to
breathe. When the cause is unknown the disease is called
Idiopathic Pulmonary Fibrosis (IPF).
While the disease can be handled for a period of
time, in most cases, the disease is fatal.
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| Who Has IPF? |
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While there is not a precise figure, there are
probably 100,000 patients with disease in the U.S. and
our best guess is that 5,000 to 7,000 Pennsylvanians
suffer from this disease.
The University of Pittsburgh Medical Center Hospital
system suggested recently that the disease was more
common then expected. Medical centers in Pennsylvania
are striving to assess the extent of lung fibrosis in
the Commonwealth of Pennsylvania to provide a better
standard of care, diagnosis, and discover new
therapeutic interventions. |
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